AMBASSADOR PROGRAM

While each family’s experience with pediatric cardiomyopathy is unique, many parents find it beneficial to connect with another parent for information and emotional support. Upon registering, CCF members can request a parent ambassador to contact them.

Role of Ambassador

CCF’s Ambassador Program offers the opportunity for certain parents to be trained in providing resources, guidance, and support to parents of children diagnosed with cardiomyopathy. CCF Ambassadors help to:

  • Build a stronger community of cardiomyopathy patients and family members
  • Strengthen relationship with top heart centers and medical professionals
  • Increase awareness of pediatric cardiomyopathy in their community

Eligibility

Cardiomyopathy parents are eligible to be CCF Ambassadors if they are registered with CCF, familiar with CCF's resources and programming, and are willing to serve and support other cardiomyopathy families.

Location

Ambassadors can serve in their local community, statewide, or even regionally.

Projects

Ambassadors may select the projects they are interested in working on, which may include:

  • Providing information and support to affected families
  • Reaching out to medical professionals and hospitals
  • Working with CCF to develop new patient materials or support services
  • Hosting a fundraiser or walk to support CCF and its mission
  • Raising awareness during American Heart Month and Children's Cardiomyopathy Awareness Month
  • Supporting CCF's advocacy efforts on cardiomyopathy-related legislation
  • Presenting to schools or community organizations to increase awareness of pediatric cardiomyopathy

Availability

Ambassadors can determine their level of involvement based on their interests and availability.

Applicants must submit an interest form and complete a virtual onboarding meeting. Contact CCF for details.