COMMUNITY EVENTS
Families and friends are getting creative in planning fundraisers and encouraging their friends, family, and colleagues to support initiatives in research, education, and family support programs.
Learn more about how you can plan your own community event: Fundraise Your Way
Upcoming Events
Harrington Park School Have a Heart Event (2/12)
Rivera's Butterfly Bee Baking Competition (2/21)
Past Events
The Sharp Family
Wes Sharp and North Star Resource Group support CCF through the annual North Star Charitable Golf Tournament. The event has been held in honor of the Sharp family’s two boys, Bennett and Mason, both who have a genetic mutation that causes left ventricular non-compaction cardiomyopathy (LVNC), a poorly understood heart disease.
The Riley Family
Casey and Heather Riley created Casen’s Crew to honor their son, Casen, who passed away from hypertrophic cardiomyopathy (HCM) at just six months old. Each year, friends, family, volunteers, and sponsors tee off for the Annual Casen’s Crew Golf Event, where they celebrate Casen’s life while raising funds and awareness for CCF.
The Skinner Family
Julie and Eric Skinner host an annual Walk for a Cure in memory of their son, Noah, who was diagnosed with hypertrophic obstructive cardiomyopathy (HOCM) as an infant. Since 2015, they have transformed grief into action, by putting their best foot forward during their annual walk event.
The Paquin Family
Henry was diagnosed with hypertrophic obstructive cardiomyopathy (HOCM) at age eight after a heart murmur led to further testing. Facing his journey with courage, Henry and his family organized a Henry’s Walk for a Cure to honor children living with cardiomyopathy, rally their community, and raise funds and awareness for CCF.
The Noyes Family
Peter Noyes selected CCF as the beneficiary of his 100-mile ultramarathon at 10,000 feet elevation in honor of his son, Everett. Born with multiple congenital heart defects and later diagnosed with left ventricular non-compaction cardiomyopathy (LVNC), Everett inspired Peter’s effort, including more ultrarunning challenges.
The Rivera Family
As a part of February American Heart Month and CCF’s Bake for a Cure, Mariclare Rivera host her Annual Butterfly Bee Baking Competition in honor of her daughter Saoirse, who was diagnosed with hypertrophic cardiomyopathy (HCM) and received a transplant in 2025. This sweet event raises funds and awareness for CCF by bringing together community members and local leaders, including city council members, the mayor, and state officials, to support children and families affected by cardiomyopathy.
The Contini Family
Artist Nikki Contini supported CCF by hosting a fundraiser featuring her fused glass artwork in honor of her niece, Savannah. Diagnosed with restrictive cardiomyopathy (RCM), Savannah received a heart transplant in 2021. Nikki’s artwork sale raised funds while sharing Savannah’s story and spread awareness of pediatric cardiomyopathy.
