Online Community
The Children's Cardiomyopathy Foundation (CCF) offers a private online community to those who register with CCF. CCF Connect, on the Facebook social media platform, provides a secure environment for members to engage in discussions, share information, and offer emotional support on issues related to pediatric cardiomyopathy. Members also are notified of upcoming CCF events, community awareness programs, and new family resources.
Many family members have found CCF Connect to be an invaluable resource as they navigate their child’s diagnosis and ongoing care. An invitation to join CCF Connect is sent upon member registration.
Member Registration
Parents/guardians, relatives, caregivers and diagnosed adults are encouraged to register with CCF. As a registered member, you will receive access to additional resources, personalized support, and profiles of cardiomyopathy centers of care. Members will also receive updates on new research studies or clinical trials specific to pediatric cardiomyopathy.
For new members, please register
by filling out the form.
For existing registered members, please log on to CCF Connect.
Existing MemberContact CCF
If you require assistance completing your membership registration or would like to schedule a one-on-one meeting for personalized support, please contact info@childrenscardiomyopathy.org and a team member will respond to your request.