The Children's Cardiomyopathy Foundation (CCF) is pleased to offer webinars as a patient support resource. Webinars are available at no cost and are open to parents, friends, relatives, and professionals registered with CCF.

Recorded webinar sessions are available to those unable to attend live. Click on the below links to view past webinars.


Evaluating for ICD Placement & Psychosocial Considerations Related to ICD Placement
Johannes von Alvensleben, M.D.
Children's Hospital Colorado
April 12, 2022

Pediatric Cardiomyopathy: Transitioning to Adult Care
Anjali Owens, M.D.
Penn Medicine
Kimberly Lin, M.D.
Children's Hospital of Philadelphia
February 22, 2022


Hypertrophic Cardiomyopathy and Youth Sports Participation
Jeffrey Kim, M.D.
Texas Children's Hospital
December 2, 2021

Emotional Side Effects of Cardiomyopathy in Teens
Jami N. Gross, Ph.D.
Children's Mercy Kansas City
September 24, 2021

The Role of Research in Improving Care for Patients with Pediatric Cardiomyopathy
Dr. Daphne Hsu, M.D.
Children's Hospital at Montefiore
August 17, 2021

Heart Failure and Ventricular Assist Devices
Neha Bansal, M.D.
Children's Hospital of Montefiore
May 5, 2021

Updates in Living with Heart Failure for the Pediatric Cardiomyopathy Community
Rakesh Singh, M.D., M.S.
Hassenfeld Children's Hospital at NYU Langone
February 18, 2021


Updates in Genetic Testing Related to Pediatric Cardiomyopathy
Wendy Chung, M.D., Ph.D.
Teresa Lee, M.D., M.S.
New York Presbyterian Morgan Stanley Children’s Hospital
October 22, 2020

Supporting Your Diagnosed Child: Suggestions from a Patient
Mike Papale
In A Heartbeat
September 17, 2020

Research Study Update: Psychological Stress in Pediatric Cardiac Patients and Caregivers During COVID-19
Melissa Cousino, Ph.D.
Kurt Schumacher, M.D., M.S.
C.S. Mott Children’s Hospital
August 19, 2020

COVID-19 Updates for Cardiomyopathy Families
Daphne Hsu, M.D.
Neha Bansal, M.D.
Children's Hospital of Montefiore
June 4, 2020

Emotional Considerations for Pediatric Cardiomyopathy Families During COVID 19 and Beyond
Debra Lefkowitz, Psy.D.
Children's Hospital of Philadelphia
May 13, 2020

Educational Considerations for Your Child: IEP/504 Information For Every Transplant Family
Stacy Hillenburg, M.Ed, DT
Right Start Pediatric Therapies
April 23, 2020

Financial Considerations: Top Things to Help with Transplant Finances
Rick Lofgren, MBA
Children's Organ Transplant Association
Allison Pela, BA
Phoenix Children's Hospital
April 22, 2020

COVID-19 and Pediatric Cardiomyopathy: Information and Updates
Daphne Hsu, M.D.
Margaret Aldrich, M.D.
Children's Hospital of Montefiore
March 31, 2020

Updates in Medical Management in Pediatric Cardiomyopathy
Beth Kaufman, M.D.
Lucile Packard Children's Hospital, Stanford University
February 28, 2020


Living with Pediatric Cardiomyopathy: Exercise & Sports Guidelines
Danielle Burstein, M.D.
Children's Hospital of Philadelphia
December 4, 2019

Pediatric to Adult Care: Tools for Transitioning
Leigh Reardon, M.D., F.A.C.C.
UCLA Children’s Hospital
September 24, 2019

Emotional Considerations for Pediatric Transplant Families
Melissa Cousino, Ph.D.
C.S. Mott Children’s Hospital
April 26, 2019

Bridging to Transplant: Heart Failure & VADs
David Peng, M.D.
C.S. Mott Children’s Hospital
April 25, 2019


Overview of the PANORAMA-Heart Failure Research Study
Robert Shaddy, M.D.
Children's Hospital Los Angeles
December 19, 2018

Exercise and Sports in the Cardiomyopathy Patient
Sharlene Day, M.D.
Rachel Lampert, M.D.
University of Michigan/ Yale School of Medicine
May 15, 2018

Adherence and Transition Considerations
Diana Shellmer, Ph.D.
Children’s Hospital of Pittsburgh at UPMC
April 24, 2018

Child Life: Services and Benefits to Patients & Families
Brittany Smith, M.A., C.C.L.S.
Ann & Robert H. Lurie Children’s Hospital
April 23, 2018

Overview of Pediatric Heart Transplants
Betsy Blume, M.D.
Boston Children’s Hospital
March 5, 2018


Coping with a Cardiomyopathy Diagnosis
Sonia Monteiro, M.D., F.A.A.P.
Texas Children’s Hospital
November 30, 2017

Developments in Research & Treatment in Dilated Cardiomyopathy
Jeffrey Towbin, M.D., F.A.C.C., F.A.A.P., F.A.H.A.
LeBonheur Children’s Hospital
September 21, 2017

Left Ventricular Noncompaction Cardiomyopathy in Children
John Lynn Jeffries, M.D., M.P.H., F.A.C.C., F.A.H.A.
Cincinnati Children's Hospital
August 23, 2017

Genetic Testing for Cardiomyopathy Families
Allison Cirino, M.S., L.G.C.
Brigham & Women's Hospital
March 29, 2017


Navigating Disability Benefits
Deanna Power
Disability Benefits Help
November 16, 2016

Overview of Pediatric Cardiomyopathy
Elfriede Pahl M.D., F.A.C.C., F.A.A.P
Ann and Robert Lurie Children's Hospital
September 22, 2016

Coping with Loss
Donna Schuurman, Ed.D.
The Dougy Center 
April 5, 2016


Preparing for Transplant Part 1
Preparing for Transplant Part 2
Joseph Rossano, M.D., F.A.A.P., F.A.C.C.
Children’s Hospital of Philadelphia
September 15, 2015


Exploring Cardiac Imaging
Brian Feingold, M.D., M.S., F.A.A.P.
Timothy Wong, M.D.
Children's Hospital of Pittsburgh/University of Pittsburgh Medical Center
December 8, 2014

Pediatric Cardiomyopathy 101
John Lynn Jeffries, M.D., M.P.H., F.A.C.C., F.A.H.A.
Cincinnati Children's Hospital
September 9, 2014

Living with Chronic Illness
Anne Farrar-Anton, Ph.D., M.S.C.P.
Joseph M. Sanzari Children's Hospital, Hackensack University Medical Center
June 17, 2014