WEBINARS
The Children's Cardiomyopathy Foundation (CCF) is pleased to offer webinars as a patient support resource. Webinars are available at no cost and are open to parents, friends, relatives, and professionals registered with CCF.
Recorded webinar sessions are available to those unable to attend live. Click on the below links to view past webinars.
2022
Evaluating for ICD Placement & Psychosocial Considerations Related to ICD Placement
Johannes von Alvensleben, M.D.
Children's Hospital Colorado
April 12, 2022
Pediatric Cardiomyopathy: Transitioning to Adult Care
Anjali Owens, M.D.
Penn Medicine
Kimberly Lin, M.D.
Children's Hospital of Philadelphia
February 22, 2022
2021
Hypertrophic Cardiomyopathy and Youth Sports Participation
Jeffrey Kim, M.D.
Texas Children's Hospital
December 2, 2021
Emotional Side Effects of Cardiomyopathy in Teens
Jami N. Gross, Ph.D.
Children's Mercy Kansas City
September 24, 2021
The Role of Research in Improving Care for Patients with Pediatric Cardiomyopathy
Dr. Daphne Hsu, M.D.
Children's Hospital at Montefiore
August 17, 2021
Heart Failure and Ventricular Assist Devices
Neha Bansal, M.D.
Children's Hospital of Montefiore
May 5, 2021
Updates in Living with Heart Failure for the Pediatric Cardiomyopathy Community
Rakesh Singh, M.D., M.S.
Hassenfeld Children's Hospital at NYU Langone
February 18, 2021
2020
Updates in Genetic Testing Related to Pediatric Cardiomyopathy
Wendy Chung, M.D., Ph.D.
Teresa Lee, M.D., M.S.
New York Presbyterian Morgan Stanley Children’s Hospital
October 22, 2020
Supporting Your Diagnosed Child: Suggestions from a Patient
Mike Papale
In A Heartbeat
September 17, 2020
Research Study Update: Psychological Stress in Pediatric Cardiac Patients and Caregivers During COVID-19
Melissa Cousino, Ph.D.
Kurt Schumacher, M.D., M.S.
C.S. Mott Children’s Hospital
August 19, 2020
COVID-19 Updates for Cardiomyopathy Families
Daphne Hsu, M.D.
Neha Bansal, M.D.
Children's Hospital of Montefiore
June 4, 2020
Emotional Considerations for Pediatric Cardiomyopathy Families During COVID 19 and Beyond
Debra Lefkowitz, Psy.D.
Children's Hospital of Philadelphia
May 13, 2020
Educational Considerations for Your Child: IEP/504 Information For Every Transplant Family
Stacy Hillenburg, M.Ed, DT
Right Start Pediatric Therapies
April 23, 2020
Financial Considerations: Top Things to Help with Transplant Finances
Rick Lofgren, MBA
Children's Organ Transplant Association
Allison Pela, BA
Phoenix Children's Hospital
April 22, 2020
COVID-19 and Pediatric Cardiomyopathy: Information and Updates
Daphne Hsu, M.D.
Margaret Aldrich, M.D.
Children's Hospital of Montefiore
March 31, 2020
Updates in Medical Management in Pediatric Cardiomyopathy
Beth Kaufman, M.D.
Lucile Packard Children's Hospital, Stanford University
February 28, 2020
2019
Living with Pediatric Cardiomyopathy: Exercise & Sports Guidelines
Danielle Burstein, M.D.
Children's Hospital of Philadelphia
December 4, 2019
Pediatric to Adult Care: Tools for Transitioning
Leigh Reardon, M.D., F.A.C.C.
UCLA Children’s Hospital
September 24, 2019
Emotional Considerations for Pediatric Transplant Families
Melissa Cousino, Ph.D.
C.S. Mott Children’s Hospital
April 26, 2019
Bridging to Transplant: Heart Failure & VADs
David Peng, M.D.
C.S. Mott Children’s Hospital
April 25, 2019
2018
Overview of the PANORAMA-Heart Failure Research Study
Robert Shaddy, M.D.
Children's Hospital Los Angeles
December 19, 2018
Exercise and Sports in the Cardiomyopathy Patient
Sharlene Day, M.D.
Rachel Lampert, M.D.
University of Michigan/ Yale School of Medicine
May 15, 2018
Adherence and Transition Considerations
Diana Shellmer, Ph.D.
Children’s Hospital of Pittsburgh at UPMC
April 24, 2018
Child Life: Services and Benefits to Patients & Families
Brittany Smith, M.A., C.C.L.S.
Ann & Robert H. Lurie Children’s Hospital
April 23, 2018
Overview of Pediatric Heart Transplants
Betsy Blume, M.D.
Boston Children’s Hospital
March 5, 2018
2017
Coping with a Cardiomyopathy Diagnosis
Sonia Monteiro, M.D., F.A.A.P.
Texas Children’s Hospital
November 30, 2017
Developments in Research & Treatment in Dilated Cardiomyopathy
Jeffrey Towbin, M.D., F.A.C.C., F.A.A.P., F.A.H.A.
LeBonheur Children’s Hospital
September 21, 2017
Left Ventricular Noncompaction Cardiomyopathy in Children
John Lynn Jeffries, M.D., M.P.H., F.A.C.C., F.A.H.A.
Cincinnati Children's Hospital
August 23, 2017
Genetic Testing for Cardiomyopathy Families
Allison Cirino, M.S., L.G.C.
Brigham & Women's Hospital
March 29, 2017
2016
Navigating Disability Benefits
Deanna Power
Disability Benefits Help
November 16, 2016
Overview of Pediatric Cardiomyopathy
Elfriede Pahl M.D., F.A.C.C., F.A.A.P
Ann and Robert Lurie Children's Hospital
September 22, 2016
Coping with Loss
Donna Schuurman, Ed.D.
The Dougy Center
April 5, 2016
2015
Preparing for Transplant Part 1
Preparing for Transplant Part 2
Joseph Rossano, M.D., F.A.A.P., F.A.C.C.
Children’s Hospital of Philadelphia
September 15, 2015
2014
Exploring Cardiac Imaging
Brian Feingold, M.D., M.S., F.A.A.P.
Timothy Wong, M.D.
Children's Hospital of Pittsburgh/University of Pittsburgh Medical Center
December 8, 2014
Pediatric Cardiomyopathy 101
John Lynn Jeffries, M.D., M.P.H., F.A.C.C., F.A.H.A.
Cincinnati Children's Hospital
September 9, 2014
Living with Chronic Illness
Anne Farrar-Anton, Ph.D., M.S.C.P.
Joseph M. Sanzari Children's Hospital, Hackensack University Medical Center
June 17, 2014