ONE CHILD

out of 100,000 are diagnosed with symptoms.

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Not every child

is identified because they may be asymptomatic.

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Cardiomyopathy

can affect any child but varies in severity.

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Two-thirds

of diagnosed children do not have a known cause.

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A diagnosis

of cardiomyopathy impacts the entire family.

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Hope

is in research to improve treatments.

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The Children's Cardiomyopathy Foundation (CCF) is creating a future of hope in which cardiomyopathy is detected earlier, more lives are saved, and all affected children can live full and active lives.

Raising Awareness

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CCF is bringing individuals together to increase awareness of a complex heart condition. Join Team CCF in spreading the word in your community.

Get Involved

Accelerating Research

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CCF is encouraging researchers to focus on pediatric cardiomyopathy to improve care and quality of life for diagnosed children. Play a role in driving research forward.

Support Research

Sharing Experiences

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CCF understands the value of sharing experiences and encourages families to record their story and share it using our Stories from the Heart storytelling app.

Share A Story

Meet Our Heart Kids

The courage of our Heart Kids is the motivation behind our work. Read their story.

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Latest News

More News

Listen to Stories

 

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Your Journey Matters.

Share your story.

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We recognize the importance of giving voice to patients and families living with a chronic heart condition. Our Stories from the Heart mobile app brings comfort, connects families, and helps others understand your journey with cardiomyopathy.

Listen to Stories

Feel Empowered

Join

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Become a CCF Member to connect with hundreds of other families and to gain access to our list of specialty centers and member resources.

Join CCF

Learn

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Make use of available information and services created to support families in their journey with cardiomyopathy.

Find Resources

Connect

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Already a CCF Member?  Log in to CCF Connect, our online community, to take advantage of additional CCF resources and services.

Connect Online