For many families, feelings of confusion, anxiety, and depression are common when their child is first diagnosed. CCF’s app, Stories from the Heart, gives patients and families the opportunity to reflect, tell their story, and express their feelings. The storytelling process can help families to make sense of their experience and to see beyond their situation.
The storytelling app is simple to use, allowing individuals to record their story on a mobile device and share their story with the CCF community. Listening to the stories of others with cardiomyopathy promotes feelings of solidarity, understanding, and hope. It also provides a perspective on care that can guide physicians in their diagnosis and treatment.
Visit our Stories from the Heart website to hear how others are coping with the challenges of living with a chronic heart condition. We encourage you to share your story about cardiomyopathy and help others along in their journey with the disease.