FAMILY FUNDRAISERS

Families across the U.S. are using creative ways to build awareness of cardiomyopathy in their community. Fundraisers can take many forms and be organized around any special interest, fun activity, or unique skill. Below are some examples of different events organized by CCF families.

Cinca Family Shopping Extravaganza

The Cinca family organized a Shopping Extravaganza in Boca Raton, Fla. with 26 retail vendors, such as 31 Gifts, Avon, and Jockey, for a fabulous day of shopping, auctions, and food. The event was planned in honor of Cristina who was diagnosed at 7 years old with hypertrophic cardiomyopathy and later had a heart transplant. The highlight of the day was when Cristina and her brother entertained guests with their own magic show. The extravaganza was well attended by 150 and raised more than $12,000 for CCF.

Casen’s Crew Golf Event

Casey and Heather Riley lost their son, Casen, to hypertrophic cardiomyopathy when he was six months old. To celebrate his life, friends and family came together in 2010 to form Casen’s Crew, an annual sporting event in Abilene, Tx., which has included a 3-on-3 basketball tournament, a 5K fun run/walk, and golf tournament over the years. In its 10th year, Casen’s Crew has grown to 200 participants and raised more than $98,000 to support CCF’s programs and assist local families affected by cardiomyopathy.

Ellis Ann Cosby Foundation Night for a Cure

David and Megan Cosby established the Ellis Ann Cosby Foundation (EAC) in 2017 as a tribute to their daughter Ellis Ann, who they lost to cardiomyopathy at 6 months old. An active contributor, the Cosbys held their own version of a Night for a Cure in Alabama and raised $12,000 to increase awareness of pediatric cardiomyopathy and help grieving parents who have experienced the loss of an infant. In the past few years, EAC has contributed over $72,000 to CCF’s research initiatives in memory of their daughter. The Cosby’s have hosted launch parties, a high school reunion fundraiser, and a golf tournament, in addition to their Night for a Cure event.

Battle of the Biotech Bands

JC & the Beakers, a rock band formed by employees from Bluebird Bio, made their debut in Boston at the 6th annual Battle of the Biotech Bands and won first place in the music competition. CCF parent, Gil Piña, played the violin in the band and nominated CCF to receive the winning proceeds of $60,790. Gil’s son, Maddox, is diagnosed with hypertrophic cardiomyopathy and receives treatment at Boston Children’s Hospital. Gil thought the band competition would be a creative way to increase awareness of cardiomyopathy and raise research funds for CCF. The high energy event drew a crowd of over 800 spectators.