ABOUT CARDIOMYOPATHY

American Heart Association
Comprehensive site with articles on cardiomyopathy, congestive heart failure, arrhythmias, and sudden cardiac death.

ARVD.com
Johns Hopkins Hospital site that provides information on the ARVD registry, physician references, news, diagnosis, support and research.

DCM Foundation
Provides support to patients and families with dilated cardiomyopathy through research, advocacy, and education.

Medscape
Overviews written by cardiologists cover the background, pathophysiology, etiology, epidemiology and prognosis for the pediatric forms of dilated, hypertrophic and restrictive cardiomyopathy. Arrhythmogenic right ventricular cardiomyopathy is also covered.

National Heart, Lung and Blood Institute
As part of the National Institutes of Health, the NHLBI provides basic health information on cardiomyopathy, heart failure and other cardiovascular diseases as well as a listing of clinical studies.

National Organization for Rare Disorders: Pediatric Cardiomyopathy
NORD provides programs and services related to education, advocacy, and research for diseases affecting fewer than 200,000 people. This report covers different forms of cardiomyopathy and their related symptoms, treatment, research and support resources.

ShaRe Registry
The Sarcomeric Human Cardiomyopathy Registry (SHaRe) is a multi-center, international repository of clinical and laboratory data on individuals and families with genetic heart disease developed as a collaboration with several world-leading cardiovascular centers.