ONLINE COMMUNITY
The Children's Cardiomyopathy Foundation (CCF) is committed to assisting children with cardiomyopathy and their families.
Families, medical and healthcare professionals, and individuals who are interested in pediatric cardiomyopathy are encouraged to register with CCF. As a member, you will have access to additional resources and receive updates on family services and new research studies specific to pediatric cardiomyopathy.
CCF Connect
Registered members will be invited to join CCF’s online community, CCF Connect, on Facebook. CCF Connect provides a private and secure environment for members to engage in discussions, share information, and offer emotional support.
Expert Q&A
In the past, members from the medical and healthcare community were invited to answer questions on pediatric cardiomyopathy. Transcripts of each Q&A session are available to registered CCF members. To view a list of topics from previous Q&A sessions, click here.
Fact Sheets
Registered CCF members will also have access to educational fact sheets covering a variety of topics related to pediatric cardiomyopathy. To view a list of topics covered, click here.
Cardiomyopathy Centers of Care
CCF maintains profiles of recognized Cardiomyopathy Centers of Care that meet CCF’s criteria for a high-quality cardiac specialty center. Registered CCF members will have access to over 40 profiles from recognized children’s hospitals across the U.S.
Click on the below "Register" button
and fill out the secure form. All submitted
information will be kept confidential.
The Children's Cardiomyopathy Foundation (CCF) is committed to respecting your privacy and seeks to protect it. All Information collected is considered sensitive data and submitted using secure encryption technologies. For more information, please review our Privacy Policy. If you have any updates to your registration information, please inform CCF.