Preparing to Go Home

When it comes time to leave the hospital, you will need to consider how to care for your child at home. Your child's cardiologist will provide guidelines on diet, medications, rest, returning to school, exercise restrictions and required follow up visits. At some point, a social worker may visit to offer assistance with the following:

  • Working with a home care agency or visiting nurse to arrange home care
  • Health insurance and billing
  • Arranging physical or occupational therapists
  • Renting necessary medical equipment (i.e. oxygen tanks, feeding pumps)
  • Recommending a counselor or support group to address your psychological or social concerns

Once your child is home, a great deal of understanding and reassurance is needed before family life returns to normal. During the first week, changes with your child may include:

  • Being more fearful or concerned about his/her health
  • Altered eating and sleeping habits
  • A change in relationship with his/her siblings because of the extra attention he/she is receiving

With time and patience, your child should be able to readjust to family and school life without difficulties. If you find that over time, your child does not seem to be adjusting, you may want to seek out counseling services through your child’s school or a local counseling practice.



Lifestyle Considerations


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