CCF’s advocacy efforts are focused on legislation that supports research on pediatric cardiomyopathy and consistent medical care that can improve outcomes and survival for children with cardiomyopathy. In the past few years, CCF has worked closely with several congressional offices to introduce cardiomyopathy related legislation aimed at greater awareness and prevention of premature death.

It is important for congressional members to know what issues concern their constituents and to understand the reasons for supporting bills on cardiomyopathy and sudden cardiac death. You can easily start a dialogue with your elected officials through three simple advocacy measures.

3 Simple Ways to Make a Difference

  1. Send an email
  2. Write a letter
  3. Call your legislator

Check out our legislative priorities page to read more about issues of importance to the cardiomyopathy community. To learn more about how you can effectively reach out to your members of congress, visit our Advocacy Training & Tools section

Take Action Today

Help our collective voice be heard by contacting your elected representatives on this priority issue. Click on the link below and send a personalized email to your members of Congress.

Take Action on the Cardiomyopathy HEARTS Act

Stay Informed

Interested in staying up-to-date with CCF’s advocacy activities? Sign up for CCF's Advocacy Alerts to be notified by email of new opportunities to take action on.

Stay in Touch

If you have contacted your legislators on one of CCF’s legislative priorities, please tell us about it. Fill out an Advocacy Contact Report so that we can keep track of outreach and assist with follow-up.