ADVOCACY TRAINING AND TOOLS

Through your actions, you have the ability to influence policy on pediatric cardiomyopathy. CCF is here to assist you in ensuring that your voice is heard at the local and national levels. Whether you call, write, or personally meet with your members of Congress – or just want to learn more about the legislative process – all the information and tools you need to get started are included in this section.

Advocacy Resources

Effective advocacy begins with understanding how the system works. CCF has developed an easy reference health policy tool kit and compiled a list of common advocacy terms to provide background information on the legislative process.

• Health Policy Tool Kit
• Advocacy Glossary and Terms
• Bill Text Search

Finding Your Legislator

To determine who represents you in Congress, visit the below sites and click on “Find Your Representative” or “Find Your Senators.”

• U.S. House of Representatives
• U.S. Senate

Communicating with Legislators

The focus of your communication should be on your personal experience with cardiomyopathy. Your story has the greatest impact on an elected official, and it is what will motivate them to take action.

These quick reference documents will assist you in communicating effectively with your legislators. It is always good practice to send a thank you letter after your meeting or their email response.

• Calling a Member of Congress
• Writing a Member of Congress
• Scheduling a Meeting with a Member of Congress
• Tips for Meeting with a Member of Congress
• Sample Meeting Request Email
• Sample Follow Up Email
• Sample Meeting Thank You Letter