The Children's Cardiomyopathy Foundation (CCF) is focused on every aspect of the disease and working with families and physicians to carry out its mission. Read about what CCF is doing to accelerate the search for causes and cures. For past news listings, view the News Archive pages.
CCF Funds Annual Pediatric Cardiomyopathy Registry Investigator Retreat
CCF sponsored the North America Pediatric Cardiomyopathy Registry (PCMR) Annual Investigator Retreat held virtually on March 26. Over 40 medical professionals from the top pediatric heart failure and cardiomyopathy programs gathered to discuss PCMR research findings, manuscripts in development, and new study opportunities.
Posted 04/07/2021 | Learn More
Cardiomyopathy Included in Department of Defense’s Peer Reviewed Medical Research Program for FY 2021 Funding
CCF was successful in getting cardiomyopathy included in the Department of Defense’s Peer Reviewed Medical Research Program (PRMRP) as an approved medical topic for federal funding. Congress appropriated $370 Million in Fiscal Year (FY) 2021 for PRMRP. This marks the third year that cardiomyopathy has been included on the funding list due to CCF’s advocacy efforts. The PRMRP program announcement was released on March 15 by the Department of Defense calling for scientific proposals to be submitted.
Posted 04/07/2021 | Learn More
February is National Heart Month
February is National Heart Month and the time to focus on heart disease, especially heart conditions affecting children. Team CCF is urging everyone to learn more, get involved, and take action through a variety of fun and creative awareness activities.
Posted 02/01/2021 | Learn More
Families urged to #KnowYourHeart during Children’s Cardiomyopathy Awareness Month in September
CCF is partnering with 17 partners to highlight Children’s Cardiomyopathy Awareness Month throughout the month of September. The awareness initiative educates the public on the signs and symptoms for cardiomyopathy and urges families to evaluate their cardiac health history for risk factors of sudden cardiac arrest.
Posted 09/1/2020 | Learn More
CCF Takes the Lead in Supporting the Cardiomyopathy HEARTS Bill
CCF is taking an active role in supporting the Cardiomyopathy HEARTS Act (H.R. 6166), bipartisan legislation introduced on March 10 by Reps. Andy Kim (NJ-03) and Andy Barr (KY-06). The Cardiomyopathy HEARTS Act calls for the establishment of surveillance research on cardiomyopathy across the lifespan and the development of educational materials targeted to school administrators, educators, and families.
Posted 03/10/20 | Learn More
CCF Works with Legislators to Introduce SAFE PLAY Act during National Heart Month
During National Heart Month in February, CCF worked with Senator Robert Menendez and Representative Bill Pascrell to introduce the Supporting Athletes, Families and Educators to Protect the Lives of Athletic Youth (SAFE PLAY) Act. The bill includes important provisions that protect student-athletes from sports medical emergencies such as sudden cardiac arrest, which is commonly associated with cardiomyopathy. In the coming months, CCF will reach out to other Congressional members to ask them to cosponsor and support the legislation.
Posted 02/26/20 | Learn More
National Heart Month: Shine a Spotlight on Pediatric Cardiomyopathy
February is National Heart Month and the time to raise awareness of heart disease, especially those conditions affecting children. Team CCF is shining a spotlight on pediatric cardiomyopathy and urging everyone to learn more, get involved, and take action through a variety of awareness activities during the month.
Posted 02/01/20 | Learn More
Children's Cardiomyopathy Awareness Month Educates Families on Sudden Cardiac Arrest Prevention
This September, CCF is raising awareness of sudden cardiac arrest prevention by encouraging families to know their cardiac health history and learn the signs and symptoms of this potentially life-threatening heart disease. Communities across the U.S. can participate in a host of awareness activities during the month of September.
Posted 08/30/19 | Learn More
CCF and American Camp Association Announces the 7th Annual AED Scavenger Hunt
This summer-long scavenger hunt puts the focus on locating automated external defibrillators (AEDs) at camps across the nation. Cardiomyopathy is a leading cause of sudden cardiac arrest in youth, and using an AED can save a life if used quickly during a cardiac emergency. The awareness initiative encourages campers to locate their camp AED, take a selfie, and post on social media outlets with the hashtag #ProtectKidsHearts.
Posted 05/20/19 | Learn More
Represent Your State in CCF's 50-State Awareness Challenge
Make sure your state is represented during National Heart Month in CCF's 50-State Awareness Challenge. During the month of February, earn a heart on CCF's Heart Month map for every awareness activity that is focused on pediatric cardiomyopathy. Share facts on social media, host a Bake for a Cure sale or Facebook fundraiser, speak to local community groups, or organize a school presentation. CCF is available to assist with ideas and fundraising materials.
Posted 01/31/19 | Learn More
Celebrate National Heart Month with Bake for a Cure
February is National Heart Month and the ideal time to gather friends and family to host a Bake for a Cure event. Bake sales will be taking place across the United States at community centers, schools, and neighborhoods to bring much-needed attention to pediatric cardiomyopathy and raise funds for research. Learn more about how you can participate in this national event to "bake" a difference for kids with heart disease.
Posted 01/23/19 | Learn More
CCF Partners with Congressman Phil Roe (TN-1) for the 4th Annual AED Hunt on the Hill
The educational event is being held in Washington, D.C. on September 27 during Children's Cardiomyopathy Awareness month. The event encourages congressional staff to learn more about sudden cardiac arrest, cardiomyopathy's relevance, and the importance of emergency preparedness and early defibrillation during a cardiac emergency.
Posted 09/11/18 | Learn More
Four CCF-Nominated Consumer Advocates Named to Department of Defense Peer Review Medical Panel
The Children's Cardiomyopathy Foundation nominated four parents to serve as consumer advocates for the Department of Defense-sponsored Peer Reviewed Medical Research Program (PRMRP). Consumer advocates, representing the patient community, will serve as reviewers for cardiomyopathy-related proposals alongside prominent scientists to determine how $330 million appropriated by Congress will be spent on PRMRP research in the fiscal year 2018.
Posted 09/06/18 | Learn More
Children's Cardiomyopathy Awareness Month Urges Families to #KnowYourHeart to Learn Risk Factors
Join us this September in raising awareness of pediatric cardiomyopathy – the number one cause of sudden cardiac arrest and heart transplants in the young. During awareness month, you can help get the word out that cardiomyopathy is a heart condition that affects thousands of children and deserves greater attention.
Posted 09/1/18 | Learn More
Sixth Annual AED Scavenger Hunt Launches During CPR and AED Awareness Week
CCF and the American Camp Association have partnered for the 6th Annual AED Scavenger Hunt. The summer-long event encourages students to locate their camp AED, take a selfie, and post to social media outlets with the hashtag #ProtectKidsHearts.
Posted 06/8/18 | Learn More
CCF Awareness Challenge Starts in February For Heart Month
CCF Awareness Challenge Starts in February For Heart Month CCF's 50-state awareness challenge helps to shine a light on pediatric cardiomyopathy. Families are representing their state with a variety of fun awareness activities held throughout National Heart Month in February. Every awareness activity earns a heart icon on CCF's Heart Month challenge map.
Posted 02/1/18 | Learn More