Frequently Asked Questions

Is there a limit to the amount of assistance a family can receive?
There is no specific limit but there are many factors that are considered when determining how much a family is awarded. CCF evaluates each application on an individual basis and makes awards based on each family’s circumstances and needs. The availability of CCF program funds also is a consideration. As such, CCF may approve an amount lower than the amount requested.

Does the program provide assistance to international families affected by pediatric cardiomyopathy?
At this time the program is open only to citizens of the United States or a US Territory, and filing a U.S. or U.S. territory (in US dollars) tax return. CCF can provide a listing of other organizations that may be able to provide financial assistance to international families.

Can I apply for assistance if I have pending applications with other organizations or am already getting help from another funding source?
Families can still apply, but other pending or approved funding sources must be listed on CCF’s application. CCF can provide financial assistance as long as the amount requested is not being covered by another organization (double-awarding). If there is a pending application with another organization, CCF will verify if any expenses are being covered by other funding sources prior to making an award.

I have received an award in the past. Am I eligible to apply again?
Families who have received an award in the past are able to reapply one year after receiving their award as long as they still meet the program’s eligibility criteria. Funding preference is given to families who have never received an award. A family cannot receive more than two awards in total.

Can I apply if I meet the income criteria but have not filed a U.S. income tax return?
A current income tax return is a critical component of the application. CCF is unable to process an application that does not include an U.S. income tax return listing the patient as a dependent. The affidavit of income can be used if a family is qualifying based on the current year’s income. A tax return from the previous year is still required to be submitted.

My current income meets the financial eligibility requirements, but the financial hardship did not occur until this year and therefore, is not reflected in my previous year’s tax return. Can I still apply?
Yes. If a family’s taxes last year do not reflect the hardship that the family has experienced from a child’s treatment in the current year, an affidavit of income can be included with the application. A sample affidavit is included with the application and can be completed by the hospital social worker in collaboration with the applicant. Pay stubs must be included with the affidavit along with last year’s tax forms.

My child has received a heart transplant. Is my family still eligible?
Families with children who require a heart transplant because of a cardiomyopathy diagnosis are able to apply to the Family Assistance Program. Expenses incurred prior to the transplant and expenses associated with follow-up care for one year post-transplant are eligible. Once a child has had a heart transplant, he or she no longer has a diagnosis of cardiomyopathy. Long-term expenses related to the care and monitoring of heart transplant recipients are not eligible for funding. Instead, CCF can provide a listing of other organizations that may be able to provide financial assistance to post-transplant families.

Are there certain types of expenses that CCF prefers to fund more than others?
The FAP guidelines includes a list of expenses covered and those that are not eligible to be covered. Applicants should include only “eligible” expenses on their applications, with accompanying receipts or bills/invoices for each expense. In the case of a family submitting for assistance with multiple types of expenses, CCF typically prefers to fund displacement expenses (lodging, food, gas, etc.) and any medical- related expenses first. Second priority is given for living expenses such as rent, mortgage, and utilities if there is proof of loss of income while the child was receiving treatment.

Can I get advance payment for my travel and lodging if related to treatment or evaluation for my child with cardiomyopathy?
Unfortunately, we are unable to provide financial assistance in advance of incurred costs for displacement expenses. Families should apply to the program for reimbursement of expenses once receipts are obtained.

I did not save all my receipts for my displacement expenses. Can I send you my credit card statement in place of receipts for food, gas and lodging?
Unfortunately, credit card statements do not provide enough details for the items purchased that we need for processing an application. Therefore, all receipts should be included with the application.

Is genetic testing covered under CCF’s Family Assistance Program?
Genetic testing that is deemed as medically necessary for treatment or diagnosis is an eligible expense. If genetic testing is elective and/or for extended family members of the patient, it is not covered under the program. Non-elective genetic testing can be covered up to $1,000 per family.

Can I submit a recent medical summary in place of a letter written by a medical or healthcare professional?
Families are welcome to include their child’s medical summary sheet, but it is not required and cannot serve as a substitute for the letter from a medical or healthcare professional. Upon receipt of an application, CCF verifies the letter with the authoring medical or healthcare professional.

How are approved awards issued?
Once an award decision is made, the family will be notified of what will be covered through the Family Assistance Program. Bills will be paid directly to vendors within 2 weeks of award approval. In the case of displacement expenses already being paid, families will receive a reimbursement check if valid receipts for expenses are provided.

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