The Children's Cardiomyopathy Foundation (CCF) is committed to assisting children with cardiomyopathy and their families.

Families, medical and healthcare professionals, and individuals who are interested in pediatric cardiomyopathy are encouraged to register with CCF. As a member, CCF will send you information about family services and resources and update you on new research studies, educational materials, and CCF events.

CCF Connect

Registered members will be invited to join CCF's online community, CCF Connect. In addition to having access to CCF's Centers of Care profiles, CCF Connect provides a secure environment for members to engage in discussions, share information, and offer emotional support.

Expert Q&A

Guests from the medical community are periodically scheduled to answer questions for a week. To view a list of topics from previous Q&A sessions, click here. Transcripts of each Q&A session are available from the CCF Connect site.

Fact Sheets

Through CCF Connect, members will also have access to educational fact sheets covering a variety of topics. To view a list of topics, click here.

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Click on the below "Register" button
and fill out the secure form. All submitted
information will be kept confidential.


The Children's Cardiomyopathy Foundation (CCF) is committed to respecting your privacy and seeks to protect it. All Information collected is considered sensitive data and submitted using secure encryption technologies. For more information, please review our Privacy Policy. If you have any updates to your registration information, please inform CCF.