If your child is admitted due to complications from cardiomyopathy, he/she may be in the intensive care unit (ICU). Specially trained doctors, dedicated nurses and technicians will tend to your child around the clock. Your child's blood pressure, heart rate, and respiratory rate will be monitored continuously for any concerns.
When you see your child, you may find him/her sedated or very drowsy with various equipment and tubes hooked to him/her. Some of the special equipment may include a breathing machine (ventilators), chest tubes to drain blood or fluid from the chest after an operation, and several intravenous (IV) lines to give blood, fluid and medications.
When your child is in intensive care (ICU), there will be many attending unit doctors, fellows and residents making rounds to discuss your child’s case. Try to make your child as comfortable as possible. Here are some tips:
When your child's condition improves, he/she will be moved to the pediatric care unit where you can take a more active role in your child's care. The nurses generally encourage parents to bath, change and feed their child because a familiar face makes the child feel more at ease. If you are unsure of how to do something because of bandages and tubes, ask the nurse to show/assist you.