Choosing a Physician, Hospital, or Insurance

American Academy of Pediatrics: How to Use Your Managed Care Plan Effectively
Questions and answers about how to work with pediatricians, subspecialists and surgical specialty services and a family’s rights for insurance coverage.

Centers for Medicare & Mediaid Services
Federal agency within the U.S. Dept. of Health and Human Services that has information on Medicare, Medicaid and low cost insurance for children.

Congenital Heart Information Network: Cardiology Services
Lists major pediatric cardiology departments and specialty congenital heart disorder centers in the U.S., Australia, Canada, Germany and the U.K.

Consumer Reports: Understanding Health Insurance
Article provides basic information on different health insurance plans and includes links on tips for buying insurance and comparing plans.

National Human Genome Research Institute: Genetic Discrimination
The NHGRI site gives information on the Genetic Information Nondiscrimination Act (GINA), a law that protects against genetic discrimination in health insurance and employment.

National Society of Genetic Counselors
Provides a directory of genetic counselors, facts about genetic counseling, an extensive list of recommended books, and information on creating a family history.

Patient Advocate Foundation
Provides professional case management services to Americans with chronic, life threatening and debilitating illnesses. Help families to resolve issues involving insurance enrollment/appeals and offer education and financial resources in areas of Healthcare Reform, the Family Medical Leave Act and debt relief.

Ranking of American's Best Children's Hospitals
Annual listing of the top children's hospitals ranked by reputation among board-certified physicians.

U.S. Dept. of Health and Human Services: Insure Kids Now Program
Provides information on state government programs offering low-cost or free health insurance for kids in working families.

Your Guide to Medicare Special Needs Plans (SNPs)
Provides information on SNPs, including how they work, services and benefits, joining, and deciding if a SNP is right for your family.

Feeding & Other Special Needs


Stay Informed
Keep current on PCM research and CCF happenings in our Heart to Heart newsletter.
Unite and Fight
Connect with hundreds of other families struggling with this disease through our online member community.
Shop for a Cure
Shop for CCF merchandise to support our research and education efforts.
The Children's Cardiomyopathy Foundation is a 501 (c)(3) non-profit recognized by the U.S. Internal Revenue Service.
© 2020 Children's Cardiomyopathy Foundation. All rights reserved.