Advocacy is an integral part of CCF’s mission. As part of our work to call attention to pediatric cardiomyopathy, we want to ensure that the concerns and needs of children with cardiomyopathy and their families are heard at the federal, state and community levels. Our advocacy efforts are focused on:
In order for our message to be heard by members of Congress, we need to work together to build a presence and show how life altering cardiomyopathy can be. Our goal is to build a nationwide network of CCF Advocates. Each of us can start building relationships with our elected officials and inspire them to act by telling our story and delivering consistent call-to-action messages.
Your personal story takes on an added impact when you join forces with hundreds of other advocates across the country. When legislators receive multiple requests on a bill or issue, it forces Congressional offices to take action.
It’s easy to get involved! Learn more about the importance of advocacy.
Learn about CCF’s key legislative issues and find out about our Congressional calls-to-action. Learn more
Whether you are a parent, family member, friend or person living with cardiomyopathy, you can make a difference by asking Congress to take action on important cardiomyopathy-related legislation. Learn more
Advocacy Training & Tools
You don’t have to be a lobbyist to call on lawmakers. If you have an issue you are passionate about, you can become an advocate with the Children’s Cardiomyopathy Foundation and reach out to members of Congress. Learn more
Interested in staying up-to-date with CCF’s advocacy activities? Sign up for CCF’s Advocacy Alerts to be notified by email of new opportunities to take action on.
Stay in Touch
If you have contacted a member of Congress on a cardiomyopathy related issue, please tell us about it. Fill out an Advocacy Contact Report so that we can assist with follow-up.