When six-year-old, Maddox Piña was diagnosed with hypertrophic cardiomyopathy, his parents, Gilberto and Tara were devastated and didn't know where to turn for help.
Fortunately, their pediatrician did and referred them to Dr. Steve Colan, a pediatric cardiologist at Boston Children's Hospital, a Children's Cardiomyopathy Foundation (CCF) Accredited Center of Care.
Dr. Colan developed a treatment plan for Maddox and recommended that they reach out to CCF for additional support. The Piñas joined CCF's online community and ordered CCF's educational materials to learn more about the disease.
"Joining CCF's family community was so helpful. We learned that we were not alone, and so many people were asking the same questions."
Gilberto considers Maddox's early diagnosis and intervention a "stroke of luck" and plans on staying connected with other CCF families. In gratitude, Gilberto wants to give back and get more involved with CCF.
Your involvement is important also. It enables the Children's Cardiomyopathy Foundation to continue directing families to specialized care centers so that kids like Maddox will receive the best care. Here's how you can help:
|•||$100 provides a month of online support|
|•||$50 funds our physician-led webinars and Q&A sessions|
|•||$25 supports the development of educational fact sheets|
Give today and help us reach our goal of raising $10,000 to fund support services and educational resources for families affected by pediatric cardiomyopathy.
Read more about connecting families
|•||Letter from CCF's Executive Director|
|•||Meet Myesha Bruce|