Cardiomyopathy continues to be one of the most serious and difficult heart diseases to treat in children. Research is critical to advancing diagnosis, treatment and care for affected children. The Children's Cardiomyopathy Foundation (CCF) takes a leadership role in accelerating basic science, clinical, epidemiologic, and translational research on all forms of pediatric cardiomyopathy. The Foundation also assists in disseminating research opportunities and study findings to patients and physicians.

CCF’s Research Initiatives

CCF works with leading researchers, medical institutions and industry partners to support a number of research initiatives focused on pediatric cardiomyopathy and heart failure.

  • Pediatric cardiomyopathy research grant program
  • Pediatric cardiomyopathy research scholar award
  • Joint research award with the American Heart Association
  • Pediatric Cardiomyopathy Registry multi-center studies
  • International Scientific Conference on Pediatric Cardiomyopathy
  • Sponsorship of medical conferences, working groups and think tanks
  • Patient recruitment for cardiomyopathy-related studies

CCF actively reaches out to organizations to further the science of cardiomyopathy and encourage research collaboration across several medical disciplines.

  • Federal agencies
  • Pharmaceutical and biotech companies
  • Relevant pediatric and cardiac societies
  • Relevant pediatric and cardiac medical and health conferences 

State of Research


Stay Informed
Keep current on PCM research and CCF happenings in our Heart to Heart newsletter.
Unite and Fight
Connect with hundreds of other families struggling with this disease through our online member community.
Shop for a Cure
Shop for CCF merchandise to support our research and education efforts.
The Children's Cardiomyopathy Foundation is a 501 (c)(3) non-profit recognized by the U.S. Internal Revenue Service.
© 2020 Children's Cardiomyopathy Foundation. All rights reserved.