CCF in the News

Listed below is a selection of news articles about the Foundation that have appeared in various national and local media outlets. If you are a parent interested in speaking to the media about your story or are a journalist interested in a writing a story about cardiomyopathy, please contact CCF's Manager of Development & Communications.


03/13/20 The Ripon Advance – Barr introduces legislation to identify more Americans with cardiomyopathy
03/10/20 Insider NJ – Congressmen Kim, Barr Introduce Bill to Raise Awareness of Critical Cardiac Condition
02/27/20 Insider NJ – Menendez, Pascrell Introduce Legislation to Protect Young Athletes


09/20/19 Pediheart Podcast #85 – Impact Of Obesity On LVH In HCM
09/18/19 WKBW Buffalo – Oishei Children's Hospital accredited by non-profit organization
08/12/19 Boston Herald – A New Heart and Hope for Hospitalized Baby
05/29/19 Niagara-Wheatfield Tribune – Research is 'urgently needed' on heart muscle disease in children, according to UB chair of AHA writing group
05/28/19 American Heart Association News – Report seeks answers about mysterious, dangerous heart disease in kids
05/28/19 Science Daily – What is known and not known about heart muscle diseases in children
05/28/19 News Medical – New insights into diagnosis and treatment of heart muscle disease in children


09/11/18 Tap into Montville – Montville's Foye Nominated Consumer Advocate for Dept. of Defense Medical Research Program
09/04/18 U.S. News & World Report – Be Smart: Keep Kids’ Hearts Healthy From the Start
09/04/18 U.S. News & World Report – Keep Kids’ Hearts Healthy: What the Celebs Have to Say
08/30/18 The Eagle – University mourns death of student Sabrina Ho
08/16/18 Abilene Reporter News – Things to do in Abilene next week: Golfing for a good cause
07/06/18 Downers Grove Patch – Neighbors Rally For Downers Grove Girl Who Needs Heart Transplant
02/05/18 Newswise – Children with Heart Failure from Dilated Cardiomyopathy are Seeing a Dramatic Improvement in Outcomes in Recent Years
02/02/18 St. Louis Children’s Hospital – Discovery Advances Understanding of Pediatric Cardiomyopathy
01/31/18 The Villager – A Mother Remembers Her Son, Undiagnosed with HCM
01/30/18 Children's Hospital of Michigan – NIH Cardiomyopathy Study led by DMC Children's Hospital of Michigan Cardiologist


11/27/17 NYP – NewYork-Presbyterian Morgan Stanley Children’s Hospital Designated Accredited Center by Children’s Cardiomyopathy Foundation
11/09/17 UPMC – Children’s Hospital of Pittsburgh of UPMC Named Accredited Center of Care by Children’s Cardiomyopathy Foundation
10/05/17 PR Newswire – Children's Cardiomyopathy Foundation Supports Congressman Pallone's Legislation to Expand Research and Education on Children's Heart Disease
10/03/17 NJ Spotlight – Rep. Pallone Re-Introduces Bill to Curb Sudden Cardiac Death in Students
10/02/17 My Central Jersey – Pallone's HEARTS Act Can Help Save Athletes and Other Children
09/21/17 Huffington Post – Emergency Preparedness When Living with Heart Disease
04/15/17 Huffington Post – Crossing The Finish Line For Kids With Cardiomyopathy
03/28/17 Newswise – Research Led by the Children's Hospital of Michigan Provides New Insights on the Management and Clinical Outcomes for Children with Cardiomyopathy
02/16/17 Huffington Post – Love Endures: Surviving After the Loss of a Child


10/13/16 – Lyndhurst Baby is Brave Ambassador for Rare Heart Condition
08/20/16 Huffington Post – The Olympic Athlete and the Risk of Sudden Cardiac Death
06/27/16 Prognosis E-News – Wayne State Research Scholar Focuses on How to Make Patient Safety, Quality and Regulation Count
04/20/16 Huffington Post – HEARTBEAT: The Real Truth About Heart Transplantation
03/07/16 Newswise – New Study Suggests That Children with Cardiomyopathy Gain Significant Benefits From Treating Entire Family
03/03/16 Stoneham Sun – Stoneham family teams up to fight youngest daughter's heart condition
02/05/16 Huffington Post – Charles Tillman: Super Bowl Star and Heart Hero
02/01/16 ELY News – Haddenham mum Sade Chambers is raising funds for the Children’s Cardiomyopathy Foundation
01/26/16 The Washington Post – Watch the emotional moment a teen wakes up after a heart transplant


11/29/15 Huffington Post – Keeping Things in Perspective: Surviving the Holidays
10/12/15 Huffington Post – What We Can Learn From The Heartbreaking Loss of Caleb Bratayley
09/30/15 Parents – How to Help Children with Cardiomyopathy
09/29/15 Mom Blog Society – When Lightning Strikes Twice: One Mom Takes Action to Educate Others about a Silent Killer
09/25/15 Huffington Post – My Mission is to Educate Parents About This Silent Killer
09/14/15 Los Angeles Times – Know your child’s heart and how to protect them from cardiac arrest
02/10/15 – Spotlight on a Devastating Children's Heart Disease During National Heart Month


12/11/14 WDET 101.9 Detroit Today – A Journey with Parents of Children Who Have Cardiomyopathy
12/11/14 WDET 101.9 Detroit Today – What is Cardiomyopathy?
12/03/14 Monterey Herald – Natural Solutions: Preventing sudden cardiac arrest in young athletes
12/01/14 NYMetroParents – What Parent’s Need to Know About Children’s Heart Health
10/24/14 SiriusXM Doctor Radio – Lisa Yue and Dr. Daphne Hsu
10/17/14 U.S. News Health – Athletic Trainers' Group Advises Heart Tests for Young Athletes
10/16/14 Newark Star-Ledger – Although Rare, Heart Condition is a Frequent Cause of Sudden Death in Young People
10/04/14 Time Warner Cable News NY1 – Pediatric Cardiomyopathy is the Leading Cause of Sudden Death in Kids
09/29/14 8Asians – Family Fights Back After Losing Two Sons to Pediatric Cardiomyopathy
09/28/14 Advance Healthcare for Physical Therapy and Rehab Medicine – NATA Releases Heart Health Guidelines
09/16/14 Macaroni Kid – What Every Parent Needs to Known About Children’s Heart Health
09/11/14 – Pascrell, Menendez Outline Proposal to Better Fund Efforts to Protect Young Athletes
09/10/14 – Listen to Your Heart
09/09/14 – Wide-Ranging Menendez, Pascrell Bill Aims to Protect School Athletes
09/09/14 – Wide-Ranging Menendez, Pascrell Bill aims to Protect School Athletes
09/09/14 Arise America – News segment (44.31) with Anchor Debbye Turner Bell
09/08/14 – Pascrell, Menendez Push Comprehensive Youth Sports Safety Legislation
09/08/14 Menendez, Pascrell Push Comprehensive Youth Sports Safety Legislation
09/08/14 FIOS1 News – Lawmakers Team Up To Create Bill Aimed at Preventing Sports Injuries in Kids
09/08/14 NJTV – Politicians, Former Athletes Promote Safety in Youth Athletics
09/07/14 – What You Need to Know About Cardiomyopathy, Back-to-School's Silent Killer
09/06/14 NBC News – Death by Exercise: Preventing Cardiomyopathy, Back-to-School's Silent Killer
09/02/14 National Organization for Rare Disorders News – Children's Cardiomyopathy Awareness Month Urges Families to #KnowYourHeart this September
09/01/14 Congenital Cardiology Today – Third International Conference on Cardiomyopathy in Children
08/31/14 Big City Moms – Super Mom of the Week
06/25/14 NJ Biz – Health Care Heroes Supplement: Children's Cardiomyopathy Foundation is Education Hero – Organization Winner
06/04/14 Barista Kids – Children’s Cardiomyopathy Foundation Kicks Off #mycampAED Scavenger Hunt in Celebration of National CPR and AED Awareness Week
05/29/14 Children's Hospital of Michigan News – New Hope for Kids with Heart Disease
02/14/14 – Local Teen Raises Funds for the Children’s Cardiomyopathy Foundation
02/06/14 Today Show – For mom who lost 2 children,
'Love Endures'


10/07/13 C and G News – Eisenhower Marching Band Camp wins Portable Defibrillator
09/30/13 Shelby-Utica Patch – Defibrillator Arrives in Time for Eisenhower Homecoming Game
09/06/13 MedPage Today – Factors at Diagnosis Predict Outcome in Children with Bad Hearts
09/03/13 ABC News – Mom Loses Two Babies to Cardiomyopathy, Inspires Research To Save Lives
09/03/13 Information Daily – Heart Muscle Disease Research Reveals Children at Greater Risk
09/02/13 University of Miami News – Lancet Study Outlines First Risk Calculator for Pediatric Hypertrophic Cardiomyopathy
08/24/13 Big Country – Fundraiser Help Parents Keep the Memory of their Baby Boy Alive
03/06/13 Newswise – Beth Israel Deaconess Medical Center Scientist Receives Grant from Children's Cardiomyopathy Foundation
02/26/13 Boulder County Business Report – Colorado University Professor Given Grant to Study Heart Failure
02/19/13 The Dallas Post – Ellie Ayers Remembered at Cheer Event
01/21/13 Long Island Newsday – Zumba Fundraiser Benefits Children's Cardiomyopathy Foundation
01/15/13 Huffington Post – Blog by Lisa Yue: My Journey From
Loss to Hope


10/02/12 Montclair Patch – Raising Awareness: Cardiomyopathy Afflicts Young Essex Girl
08/22/12 Greensboro News Record – A $1,000 Cup of Lemonade
07/25/12 and The Suburbanite – Children's Cardiomyopathy Foundation of Tenafly Hosts 10th Annual Golf Classic
05/29/12 Minneapolis Star Tribune – For Blaine Family, Help is Truly Heartfelt
05/30/12 ABC Newspapers – Blaine Sisters Shared the Need
for a New Heart


11/01/10 Congenital Cardiology Today – The Children's Cardiomyopathy Foundation's Second International Scientific Conference Keeps Cardiomyopathy at the Forefront of Pediatric Medicine


06/01/09 Congenital Cardiology Today – Materials from Children's Cardiomyopathy Foundation Designed to Meet Different Patient Education Needs


05/01/05 The Parent Paper – Lisa Yue Fights Back: Tenafly Mom Works to Defect the Disorder That Took Her Sons' Lives


12/01/04 Good Housekeeping – 2004 Heroes for Health Awards: Lisa Yue Turning Grief into a Good Cause
12/26/04 The New York Times – After Tragedy, Resolve to Battle a Heart Disease
10/01/04 The Peddie Chronicle – From the Heart: Lisa and Eddie Yu Establish Foundation for Children
11/19/04 The Bergen Record – Tenafly Mom's Loss of Sons Leads to Activism Award
09/30/04 Sterling Heights Mirror – Woman Helps Her Kids, Others With Cardiomyopathy
08/30/04 Crain's Investment News – Teeing Up for a Kids' Charity
08/26/04 Royal Oak Mirror – Father Copes by Creating
07/30/04 World Journal – Lisa Yue's Commitment to Curing Cardiomyopathy
07/13/04 The Bergen Record – When Tiny Hearts Give Out


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