Financial Concerns

Dealing with medical expenses can be overwhelming in terms of reviewing bills and meeting payments on time. Depending on the severity of the diagnosis, medical costs for cardiac care can be extremely expensive covering diagnosis, treatment, specialists, hospitalization, surgical procedures and follow-up care. Also, travel, food and lodging expenses need to be considered if treatment is at a medical center away from home. If you find it difficult to meet all expenses due to insurance policy limits and service restrictions, speak to the hospital social worker about state assistance programs. The amount of financial aid that can be awarded depends on state eligibility guidelines, a family's financial situation,  insurance policy and the cost of child’s care.

If your child sees several specialists or has been hospitalized, you may receive several bills from different departments within the same hospital. It is a good idea to check with your health insurance on whether they have or will directly pay the doctor or hospital and whether hospital, doctor or lab fees were settled at a lower contracted rate than what is indicated on your hospital bill.

CCF's Family Assistance Program

The Children’s Cardiomyopathy Foundation's Family Assistance Program (FAP) ensures that children with cardiomyopathy have access to the medical services and items they need for optimal care. The fund was established to assist low-income families with cardiomyopathy-related medical and non-medical needs when insurance and other financial resources have been exhausted. For qualifying families, CCF will reimburse for treatment expenses not covered by insurance and for displacement fees incurred during evaluation and treatment. For more information, please refer to the Family Assistance Program page.

Insurance Issues


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