Family Conference Videos

The following video presentations are from CCF's Living with Cardiomyopathy Family Conference held on October 12, 2019 in Philadelphia, PA. Each presentation can be viewed by clicking on the presentation name.

Plenary Sessions

Welcome Remarks
Lisa Yue, MBA
Executive Director
Children's Cardiomyopathy Foundation

Current State of Medical Management
Anjali Tiku Owens, MD
Medical Director, Center for Inherited Cardiovascular Disease
Penn Medicine

Joseph Rossano, MD, MS
Chief, Division of Cardiology
The Children's Hospital of Philadelphia

Developments in Cardiomyopathy Research and Clinical Trials
Kimberly Y. Lin, MD
Medical Director, Pediatric Cardiomyopathy Program
The Children's Hospital of Philadelphia

Physician Q & A Session
Anjali Tiku Owens, MD
Joseph Rossano, MD, MS
Kimberly Lin, MD

Pediatric Track

Overview & Family Resources
Gina Peattie, MPA
Director, Family Support & Outreach
Children's Cardiomyopathy Foundation

Medical & Surgical Management
Matthew O'Conner, MD
Medical Director, Heart Transplant Program
The Children's Hospital of Philadelphia

Exercise & Sports Guidelines
Danielle Burstein, MD
Assistant Professor, Sections of Exercise Physiology and Cardiomyopathy/Heart Transplantation
The Children's Hospital of Philadelphia

Teen Years & Transition to Adult Care
Debra Lefkowitz, PsyD
Assistant Professor of Clinical Psychology
The Children's Hospital of Philadelphia

Pediatric Patient Panel
Moderated by Kimberly Y. Lin, MD
Medical Director, Pediatric Cardiomyopathy Program
The Children's Hospital of Philadelphia

Adult Track

Overview & Resources for Adult Patients
Debbie Gordon, MSS, LCSW
Penn Medicine

Medical & Surgical Management
Nosheen Reza, MD
Advanced Heart Failure and Transplantation Fellow
Penn Medicine

Exercise & Sports Guidelines
Sharlene Day, MD
Associate Professor of Medicine, Division of Cardiology
Penn Medicine

Living with Your Disease Long Term
Amy Marzolf, CRNP, MSN
Penn Center for Inherited Cardiovascular Disease
Penn Medicine

Adult Patient Panel
Moderated by Anjali Tiku Owens, MD
Medical Director, Center for Inherited Cardiovascular Disease
Penn Medicine

Lunch Speaker

Finding Inspiration with Medical Challenges
Mike Papale, President
In a Heartbeat Foundation

 

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