During the hospital stay, your child will turn to you for emotional support. All children, regardless of age, worry about separation from their parents. Feelings of loneliness or of being abandoned in a strange place are what distress children the most when they are in unfamiliar surroundings. You can put them at ease by reassuring them of your presence and reminding them how critical it is to be treated by the doctors at the hospital.
Young children under the age of 5 need a parent or somebody familiar to stay with them while older children need daily visits by somebody familiar to them. Children also need to be encouraged to talk about their experience and feelings. Your involvement in their care will help your child maintain his/her daily schedule while retaining some degree of routine.
Working with the Hospital Care Team
While your child is in the hospital, you will meet many different health professionals ranging from cardiologists, electrophysiologists and geneticists to nutritionist, gastroenterologist, occupational and physical therapists and feeding specialists. You can ensure that your child receives the best medical care by being proactive. You are the best person to interpret your child’s needs and wants and to inform doctors when something seems out of the ordinary.
Here are some basic tips to keep in mind when dealing with various health professionals:
When your child is in the hospital, it can be a challenging time for the entire family. Review the Getting Support page for some practical tips on getting help while your child is in the hospital.
If your child is admitted to intensive care because of complications related to his/her heart condition or requires an emergency procedure, there will be additional considerations for managing your child’s care. For more information on emergency hospitalization, please click here.