CCF Webinars

The Children's Cardiomyopathy Foundation (CCF) is pleased to offer webinars as a patient support resource. Webinars are available at no cost and are open to parents, friends, relatives, and professionals registered with CCF.

Recorded webinar sessions are available to those unable to attend live. Click on the below links to view past webinars.

Overview of the PANORAMA-Heart Failure Research Study
Dr. Robert Shaddy
Children's Hospital Los Angeles
December 19, 2018

Exercise and Sports in the Cardiomyopathy Patient
Dr. Sharlene Day & Dr. Rachel Lampert
University of Michigan/ Yale School of Medicine
May 15, 2018

Adherence and Transition Considerations
Diana Shellmer, Ph.D.
Children’s Hospital of Pittsburgh at UPMC
April 24, 2018

Child Life: Services and Benefits to Patients & Families
Brittany Smith, MA, CCLS
Ann & Robert H. Lurie Children’s Hospital
April 23, 2018

Overview of Pediatric Heart Transplants
Dr. Betsy Blume
Boston Children’s Hospital
March 5, 2018

Coping with a Cardiomyopathy Diagnosis
Dr. Sonia Monteiro
Texas Children’s Hospital
November 30, 2017

Developments in Research & Treatment in Pediatric Cardiomyopathy
Part 1: Dilated Cardiomyopathy

Dr. Jeffrey Towbin
LeBonheur Children’s Hospital
September 21, 2017

Left Ventricular Non-compaction Cardiomyopathy in Children
Dr. John Jefferies
Cincinnati Children's Hospital
August 23, 2017

Genetic Testing for Cardiomyopathy Families
Allison Cirino, MS, LGC
Brigham & Women's Hospital
March 29, 2017

Navigating Disability Benefits
Deanna Power
Disability Benefits Help
November 16, 2016

Overview of Pediatric Cardiomyopathy
Dr. Elfriede Pahl
Ann and Robert Lurie Children's Hospital
September 22, 2016

Coping with Loss 
Dr. Donna Schuurman 
The Dougy Center 
April 5, 2016

Preparing for Transplant Part 1
Preparing for Transplant Part 2
Dr. Joseph Rossano
Children’s Hospital of Philadelphia
September 15, 2015

Exploring Cardiac Imaging
Dr. Brian Feingold & Dr. Timothy Wong
Children's Hospital of Pittsburgh/University of Pittsburgh Medical Center
December 8, 2014

Pediatric Cardiomyopathy 101
Dr. John Jefferies
Cincinnati Children's Hospital
September 9, 2014

Living with Chronic Illness
Dr. Anne Farrar-Anton
Joseph M. Sanzari Children's Hospital, Hackensack University Medical Center
June 17, 2014

 
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