About the Foundation

The Children's Cardiomyopathy Foundation (CCF) is a non-profit organization focused on pediatric cardiomyopathy, a chronic and potentially life-threatening heart disease. It is a condition that is not well known even though it is a leading cause of heart transplants and sudden cardiac arrest in children.

CCF was established in 2002 as a 501 (c)(3) public charity to meet the pressing need for more research and education on pediatric cardiomyopathy. Since its inception, CCF has grown into an international community of families, physicians, and scientists dedicated to improving diagnosis, treatments and quality of life for children with cardiomyopathy. CCF is involved in all aspects of the disease, including research, physician and patient education, advocacy, and patient and family support.

CCF serves the needs of both the patient and medical communities by:

  • Catalyzing research and promoting physician education on the disease.
  • Advancing treatment models.
  • Providing leadership in the pediatric community and advocacy at the federal and state level.
  • Assisting families and affected children from birth to adulthood.

CCF Pamphlet


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The Children's Cardiomyopathy Foundation is a 501 (c)(3) non-profit recognized by the U.S. Internal Revenue Service.
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