Be an Advocate

Advocacy is an integral part of CCF’s mission. As part of our work to call attention to pediatric cardiomyopathy, we want to ensure that the concerns and needs of children with cardiomyopathy and their families are heard at the federal, state and community levels. Our advocacy efforts are focused on:

  • Increasing funding for pediatric cardiomyopathy research and education
  • Promoting awareness of cardiomyopathy and sudden cardiac arrest
  • Identifying and diagnosing at-risk children with cardiomyopathy
  • Improving health outcomes and preventing premature death
  • Providing better access to specialized medical care

In order for our message to be heard by members of Congress, we need to work together to build a presence and show how life altering cardiomyopathy can be. Our goal is to build a nationwide network of CCF Advocates. Each of us can start building relationships with our elected officials and inspire them to act by telling our story and delivering consistent call-to-action messages.

Your personal story takes on an added impact when you join forces with hundreds of other advocates across the country. When legislators receive multiple requests on a bill or issue, it forces Congressional offices to take action.

It’s easy to get involved! Learn more about the importance of advocacy.

Legislative Priorities

Learn about CCF’s key legislative issues and find out about our Congressional calls-to-action. Learn more

Take Action

Whether you are a parent, family member, friend or person living with cardiomyopathy, you can make a difference by asking Congress to take action on important cardiomyopathy-related legislation. Learn more

Advocacy Training & Tools

You don’t have to be a lobbyist to call on lawmakers. If you have an issue you are passionate about, you can become an advocate with the Children’s Cardiomyopathy Foundation and reach out to members of Congress. Learn more

Stay Informed

Interested in staying up-to-date with CCF’s advocacy activities? Sign up for CCF’s Advocacy Alerts to be notified by email of new opportunities to take action on.

Stay in Touch

If you have contacted a member of Congress on a cardiomyopathy related issue, please tell us about it. Fill out an Advocacy Contact Report so that we can assist with follow-up.

CCF Advocacy Efforts

Stay Informed
Keep current on PCM research and CCF happenings in our Heart to Heart newsletter.
Unite and Fight
Connect with hundreds of other families struggling with this disease through our online member community.
Shop for a Cure
Shop for CCF merchandise to support our research and education efforts.
The Children's Cardiomyopathy Foundation is a 501 (c)(3) non-profit recognized by the U.S. Internal Revenue Service.
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