The Children's Cardiomyopathy Foundation (CCF) is committed to advancing knowledge in the medical and health care community and stimulating innovative and collaborative research on pediatric cardiomyopathy. This is achieved through hosted conferences, sponsorships and meeting outreach.
The Foundation organizes the international scientific conference on cardiomyopathy in children to bring together a multidisciplinary group of cardiomyopathy specialists to review and discuss the most current research on pediatric cardiomyopathy. The conference aims to identify research gaps, priorities and direction, as well as evaluate new approaches and technologies that may contribute to a better understanding of the disease and improve intervention and prevention.
In 2007, 2010, 2014, and 2017, CCF hosted the International Scientific Conference on Cardiomyopathy in Children in Bethesda, MD. The conference proceedings are published in Progress in Pediatric Cardiology. Past conference articles in Progress in Pediatric Cardiology have been ranked as the most downloaded articles in the journal’s history.
CCF regularly sponsors medical symposiums and family conferences on pediatric cardiomyopathy and pediatric heart failure.
CCF also works with the National Heart, Lung, and Blood Institute to advocate for working groups such as “Cardiomyopathies in Children with Rare Diseases“.
Through its education and outreach initiatives, CCF’s research programs and family support services are promoted to cardiologists, geneticists, researchers, nurses and allied health professionals including social workers, genetic counselors and child life specialists.
At major international conferences, such as the American Heart Association Scientific Session, American College of Cardiology Scientific Session and the American Academy of Pediatrics Conference, CCF-funded research findings are presented by CCF’s medical advisors, research grant recipients and Pediatric Cardiomyopathy Registry investigators. The Foundation also distributes materials to medical meetings in the area of pediatrics, cardiomyopathy, heart failure, heart transplantation, and sudden cardiac arrest.