Living with Pediatric Cardiomyopathy (PCM)

A family faces various medical, emotional and financial issues when their child is diagnosed with pediatric cardiomyopathy. Because it is a chronic disease, families may encounter different dilemmas and choices while caring for their child at home or at the hospital. New challenges may include feeding and diet, giving medication, watching for signs of trouble, monitoring physical activity and dealing with various psycho-social issues as a child gets older.

This section is meant to provide families with practical information on living with cardiomyopathy. A diagnosis of cardiomyopathy can cause your family to feel anxious and alone, but the Children’s Cardiomyopathy Foundation can help by connecting you to the right people, information and resources.

The following information provides basic information about living with cardiomyopathy and is not intended to be conclusive in its medical content or to replace a consultation with a qualified medical professional. Cardiomyopathy is a variable disease with different forms, and any changes in medical care should be discussed with a pediatric cardiologist and appropriate pediatric specialists.

Medical Care

 

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